Cameron Boyce’s Parents Talk About Finding Meaning In His Death Through Foundation
As we’ve previously reported here at MickeyBlog, it’s been a year since Cameron Boyce passed away and in a recent interview with E!, they said there’s not a painless day that goes by. Libby and Victor Boyce go on to say that they have managed to find meaning in Cameron’s death by working tirelessly to get the Cameron Boyce Foundation up and running.
Boyce was a beloved actor and Disney regular who worked on the popular shows Jessie and Descendants.
A visit to the Cameron Boyce Foundation website shows a wide remit that includes striving for cures for epilepsy and SUDEP (which caused Cameron’s death) as well as a commitment to eradicate gun violence and other causes that were close to Cameron’s heart. During their recent interview the couple discussed how they look toward the future with a strengthened sense of purpose. .
The couple revealed that the foundation was actually set up quickly after Cameron’s depth and came out of a need “to do something, or to carry on what he was going to do.” Victor Boyce continues, “It was something that we felt was necessary and we thought Cameron would want us to do, and also something to give us purpose and try and find meaning in his loss, because it was just so horrible and really horrible to this day. It kind of gives us purpose and we want to help other families and other people and just be positive.”
Cameron’s mother Libby added, “We realized that Cameron passed from epilepsy—he passed from something called sudden unexpected death in epilepsy (SUDEP)—and that we needed to ensure his death was not in vain. And that we would put all we can with our resources and the platform that we have, with our voice, to getting research on epilepsy out there, so we can do our part in terms of ending epilepsy and ending SUDEP. That is pretty much at the core of the Cameron Boyce Foundation.”
VIctor and Libby have worked via Cameron’s foundation to form important partnerships with organizations like the Epilepsy Foundation which included a campaign and PSA that aims to educate people on epilepsy. They’re also looking to fund a research effort to give students and young researchers an opportunity to break into the field of epilepsy research.
When asked specifically about SUDEP, Victor talked about how unexpected Cameron’s passing was saying- “Cameron was 100 percent healthy. There was nothing wrong with Cameron that you could see or feel, or even measure. The type of epilepsy that he had, it wasn’t something that you could even do a scan and find it. It’s hard to answer it because it’s a very broad area that is not easy to pin down. It’s not easy to identify.”
When asked about how they would like Cameron’s legacy to be remembered his mother Libby said, “Well, I hope they remember his love and remember Cameron in positive ways. To see how he’s impacted people, somehow, in such a way that was very, very intense. I mean, just being proud of him.” She added, “Obviously we miss him terribly and there is not a painless day that goes by for us, and we will be in pain forever. But to think that, you know, he left his mark on young people and encouraged them to speak their truth and to do whatever they can to help the world and be charitable and be kind, and all those things. I mean, that’s what he was all about.”
Those interested in making a donation to the Cameron Boyce Foundation can do so here.